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1 contribution to Spinal Warrior - Brotherhood
From Surviving to Living — What Changed for You?
You’ve lived with your injury for years. Looking back, what’s one lesson or mindset shift that helped you move from just surviving to actually living again? It could be practical, emotional, or something you wish you’d learned sooner. Your experience might be exactly what another brother needs to hear.
From Surviving to Living — What Changed for You?
1 like • 18h
I’ve been in a wheelchair for nearly 40 years now.I’m a C4–5 tetraplegic. Looking back, one of the most important things I got right — eventually — was taking control of my own care. Employing my own caregivers. Setting up a routine. Yes, a boring routine. But routine gives you freedom. It gives structure to the day, makes things possible, and helps you get out into the world — to work, to participate, to live. When you’re on ACC, you can choose to manage your own care package. You can advertise locally, through places like Trade Me or community boards, and build a team that works for you. Over time, you learn who fits. Some carers bring practical experience. Others you train yourself. You learn — sometimes the hard way — how to choose the right people. My caregivers work in shifts: mornings, afternoons, nights. Twenty-four hours a day. Because life doesn’t stop at 5pm. Once you have the right people around you, something important happens. They become your arms and legs — but you still hold the power. You still decide what your day looks like. Whether that’s going down to the beach for a coffee or an ice cream, heading to the pub, or simply being out in the community — being seen, and seeing others — it all matters. Independence isn’t about doing everything yourself.It’s about having the support that lets you live your life on your terms.
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Mark Williams
1
4points to level up
@mark-williams-3170
National Sales Manager HT Systems www.htsystems.co.nz

Active 13h ago
Joined Dec 20, 2025