Hi When you were diagnosed with CKD, did the gfr was considered based on creatinine levels or cystatin c based levels. My husband had his first nephro appointment here in germany and results came out today. His one month old report in india (14/4) Creatinine - 1.17 mg/dl Microalbumin-albumin - 64.30 mg/l Urinary creatinine - 74.89 mg/dL Microalbumin-albumin creatinien ratio - 85.86 mg/g cr His latest reports in Germany (28/5) Creatinine - 1.34 mg/dl GFR - 68 Microalbumin-albumin - 30 mg/l Urinary creatinine - 62 mg/dL Microalbumin-albumin creatinien ratio - 48 mg/g cr Cystatin C - 1.45 mg/L GFr -52.5 I am bit worried… Can someone guide if you have already done cystatin C test and how doctors interpret the results. Because our next appointment with nephro is in September. @Arjun Sabharwal doctor if you can also guide. One positive thing is that the doctor ran tests for autoimmune kidney disorders and all results came back negative.

Welcome @Amrit Pal Singh to The Kidney & Health Club I'd like to introduce a very special guest who will be joining our community. Unlike many of our speakers, he doesn't just talk about kidney disease — he lives with it. He has been managing diabetic nephropathy himself and has spent years learning how to navigate the physical, emotional, and spiritual challenges that come with chronic illness. What drew me to his story is that he doesn't focus only on medicines and reports. He talks about: - finding hope during difficult times - staying positive despite setbacks - the role of spirituality and mindset - living a meaningful life while managing a chronic condition This is a perspective we don't often hear, but one that many people need. Because health is not just about creatinine, eGFR, or medications. It's also about how we cope, adapt, and keep moving forward. Please join me in welcoming him to the community. Tell us What has been the hardest part of your health journey so far?

I'm delighted to welcome @Dr. Ishita Sachdev to our community, where they will be helping members with diabetes education and support. Diabetes is one of the most common causes of kidney disease, yet many people struggle with: - understanding their HbA1c - making the right food choices - staying consistent with lifestyle changes - knowing what really matters Dr. Sachdev will help us simplify these topics and provide practical guidance that members can apply in daily life. Our goal is to bring together experts who can support every aspect of health — kidney health, nutrition, mental wellbeing, and now diabetes education. Please join me in welcoming Dr Sachdev and feel free to comment below with your biggest diabetes-related question.

This Thursday, we’ll have a special session with our Health Coach & Nutritionist 🙌 @Sonali Makani Kayal What makes this session different is that she is not just teaching from books. She was a caregiver for her mother, who had CKD, and spent years helping manage her diet, appointments, and daily struggles. So she understands: - the emotional side of kidney disease - caregiver stress - practical food problems - and what patients actually go through every day We also have @Alka Phutela who is a nutritionist and has been diagnosed with protein leak. I’m sure many of you will learn a lot from both their experience and guidance 💬 Comment below What specific question would you like covered in the webinar? Examples: - protein confusion - potassium/phosphate foods - Indian diet questions - eating outside - weakness/fatigue - supplements Drop your questions below 👇

I’m very happy to introduce @Sonali Makani Kayal , a nutritionist and health coach joining the community 🙌 But what makes her journey special is not just her experience — it’s the reason behind it. Sonali’s mother suffered a brain stroke and later developed kidney failure. As a caregiver, she spent years learning about kidney disease, diet, lifestyle, and the emotional struggles families go through. Even after losing her mother in 2016, she continued this journey to help others facing similar challenges. That is the kind of person we want in this community: someone who understands not just the science, but also the human side of illness. Let’s make her feel welcome Comment below with: 👉 one health goal you’re currently working on 👉 or one diet confusion you want help with We’re building this community together 🙏