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The Kidney & Health Club

147 members • $15

18 contributions to The Kidney & Health Club
New update in kidney treatment
A drug called sparsentan has now received FDA approval for FSGS (Focal Segmental Glomerulosclerosis). This is important because FSGS is a condition where patients often have significant protein leak, and treatment options have been limited. Sparsentan works by targeting pathways involved in proteinuria reduction, and studies have shown it can help reduce protein leak in selected patients. But this is important ⚠️ Sparsentan (FSGS) — who is it for? Key cut-offs (from trials / approval context) - eGFR: generally ≥ 30 mL/min/1.73 m² - Proteinuria: significant protein leak (often UPCR ≥ 1.5 g/g) - Diagnosis: biopsy-proven primary FSGS (not secondary causes) What this means for you It’s a positive step forward in kidney care. But more importantly:Understanding your own reports (protein, eGFR, diagnosis) matters before thinking about treatments like this. New treatments are coming — which is good. But the basics still matter: - controlling BP - reducing protein leak - staying consistent Comment below - what do you think?
0 likes • 3d
I am not very familiar with FSGS, but I think this is a great step forward.. Science is progressing every day and bringing hope to many people living with chronic illnesses.. At the same time, I truly believe that alongside medical treatments, individuals also need to take active steps such as controlling blood pressure and diabetes, staying physically active (even walking), reducing salt intake, etc. And above all, it is important to stay positive, trust the treatment and have faith in your doctor..
7 PM IST today — Live session on Supplements 💊
We’ll cover: * What actually works * What to avoid * How to take safely 📘 Plus: I’ll share a 30-supplement blueprint + free guide for you Join via the Skool calendar section COMMENT BELOW IF YOU ARE COMING
0 likes • 5d
I missed this session because of the time confusion. :( feeling so bad!!!
0 likes • 4d
@Arjun Sabharwal amazing i will be watching the recording because i dont have any idea that vitamins are important or how they work with ckd..
🥗 New Update — Dietician Coming Soon
We’re planning to introduce a dietician inside the community. The idea is simple:👉 Weekly sessions where you can - ask questions about your diet - understand what to eat (and what to avoid) - get practical, realistic guidance This will help especially with: - kidney disease - diabetes - protein leak - daily food confusion Why this matters A lot of people struggle not with medicines…but with what to eat every day This is something we want to make clearer for everyone. Your input matters Do you think this will help you? 👉 Comment below: Good idea / Not useful / What would you like covered 🙌 One small ask If you’re finding value here, share this community with someone who might need it. We’re building this together.
0 likes • 7d
Wow, what a great initiative. It is going to benefit us all as there are lots of confusion about what to eat what not to eat and so on!
Tomorrow. 10:30 AM IST. Hot Seat Live.
One of our members is stepping forward. Thank you @Roopa Manglani She is going to share her full journey — her diet, her lifestyle, what she changed, what she struggled with, and how she found her way. This takes real courage. She is not doing it for herself. She is doing it so that YOU don't have to walk this road alone. So here is my one request — Show up for her. Even if you don't speak. Even if you just drop a ❤️ in the chat. Even if you keep your camera off and just listen. Your presence tells her that her story matters. That her vulnerability is safe here. That opening up was worth it. This is what this community is. We show up for each other. 📅 Tomorrow — 10:30 AM IST 🎙️ Topic: Diet & Lifestyle with CKD 👉 Comment "I'll be there" below so she knows you're coming. Let's fill that room.
1 like • 13d
I will really try to join..
She walked out of my clinic and cried in her car.
Not because of CKD. Because I told her she had to change her diet. Her mother's dal. Her everyday food. Gone — just like that. That pain is real. I see it every day. But 6 months later — she came back. GFR stable. Still eating Indian food. Just a little differently. That's the journey. From "everything is over" to "okay, I can do this." This Sunday 19/04/26 10:30 AM IST — we're going LIVE. One of our members can share exactly this story. The fear. The diet changes. What worked. What didn't. Come with your questions. No judgment here. 👉 Are you joining us Sunday? Comment below. Want to Volunteer? Just drop me a message. And if you've ever cried after a doctor's appointment — just drop ❤️. We understand.
1 like • 15d
I will try to join the seminar, however its too early in Germany.. ❤️ i just heard kidney is under stress and i started panicking..
1-10 of 18
Anisha Marwha
2
1point to level up
@ashima-marwha-2680
A

Active 2d ago
Joined Mar 12, 2026
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