Like many Australians, I've spent the past week reflecting on the extraordinary life and legacy of Neale Daniher. Neale achieved something very few people ever do. He took a disease that most people had never heard of and made the entire country pay attention. Because of his courage, determination and relentless advocacy, millions of dollars have been raised for research, awareness has grown enormously, and countless families affected by MND have felt seen and supported. What he achieved is nothing short of remarkable. On a personal level, Neale's journey has inspired me from the day I was diagnosed. Not just because of what he accomplished, but because of how he chose to live. He showed the world that a diagnosis doesn't have to define your contribution. That purpose doesn't disappear when life gets hard. And that even in the face of unimaginable adversity, you can continue to make a difference. One thing I've become increasingly aware of over the years is how privileged I am to still be here. The average life expectancy following an MND diagnosis is around 2-3 years. I was diagnosed in 2017. Many of the people I've met along this journey. Many of the people I've advocated alongside. Many of my friends in the MND community have not had the opportunity to live this long. And I think about that often. Because with that privilege comes responsibility. A responsibility to keep speaking up. A responsibility to keep advocating. A responsibility to help people understand what this disease does to individuals and families. And a responsibility to represent those who no longer have the opportunity to tell their own story. And what an honour that is. Neale carried that responsibility with extraordinary grace, and his example continues to inspire me every day. While his passing is incredibly sad, I don't think his work ends here. His legacy lives on in every person who continues the fight. Every researcher searching for answers. Every advocate raising awareness. Every family refusing to give up hope And every person living with MND who chooses to keep showing up, one day at a time.