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117 contributions to Tinnitus Reset Toolbox
This is what ENTs told me about tinnitus (twice)
When I first developed tinnitus, I went to see an ENT. I was basically told: “Just live with it. There’s nothing you can do.” That was it... 😯 No guidance, no plan, no real support. Of course, it made me feel worse. Some years later, I went back, this time because of TTTS. (middle-ear muscle spasms that can be extremely distressing) Different doctor, same feeling. Again: “There’s nothing you can do.” And then this: “We could cut the (middle-ear) muscle… but we don’t know if it will help. It might make things worse.” Both experiences left me feeling: More anxious More confused And completely on my own Each time, it pushed me into a deep search for answers. Eventually, I figured things out… but not thanks to these visits. 🤷‍♂️ Now I’m really curious about you 👇 What was your experience the first time you saw a doctor for tinnitus, hyperacusis, TTTS, or something similar? What did they tell you? How did it make you feel? Did it help… or make things worse? Let’s share openly, please. I think this will help a lot of people here. 🙏💙
This is what ENTs told me about tinnitus (twice)
3 likes • 1d
@Susan Harcharik Glad you’re here sharing you're definitely not alone in this.
1 like • 10m
@Karen Dowell 🫶
What part of tinnitus has impacted your life the most?
For me, it wasn’t just the noise. It was communication. Back when I was working as a software product manager, my entire day was meetings, conversations, decisions. And suddenly… - I was missing details - Struggling to follow conversations - Losing track when multiple people were talking It honestly felt like I couldn’t do my job the way I used to... That was probably the hardest part for me. But at the same time… That struggle is also what pushed me to: - Understand what was actually happening - Change how I responded to it - And eventually start helping others And somehow, that led to this community. 💙 I wouldn’t call tinnitus a gift. Not by any stretch. But I’ve seen this over and over: 👉 The way we respond to it can either keep us stuck… 👉 or slowly push us to adapt, grow, and regain control I'm curious about you: 👉 What has been the hardest part of tinnitus (or TTTS, hyperacusis, etc.) in your life? I'd really love to hear your experience. 🙏
What part of tinnitus has impacted your life the most?
2 likes • 10h
@Mike Morton When the nervous system is sensitive, normal sounds can feel overwhelming but that doesn’t mean it won’t improve. Habituation usually comes back slowly with time and gentle exposure
1 like • 16m
@Susan Harcharik 🫶
Sleep
And advice how to sleep better with Tinnitus? I had some bad nights and this worsens my T. Thanks.
2 likes • 10h
Sleep is definitely one of the hardest parts with tinnitus and bad nights can make everything feel louder the next day.
What's the main tool or method you using to cope with your tinnitus?
I'm doing some research so I can offer you all more great content and services. Would really appreciate your vote AND comments. 🙏😁💙
Poll
13 members have voted
1 like • 10h
@Mike Morton
1 like • 10h
@Colm Byrne
Motorcycle
Hi Guy Do you still ride your motorcycle? Thanks
2 likes • 3d
@Guy Cohen was that you Guy? that was cool!
1 like • 11h
@Guy Cohen
1-10 of 117
Elena Thompson
6
1,435points to level up
@elena-thompson-9869
Long-term tinnitus. Learned how to reduce its effect over time. Committed to helping other tinnitus sufferers.

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Joined Feb 16, 2026
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