Why communities like AIS matter · AI Automation Society

Why communities like AIS matter

Hello to all. I have been part of this community for a while now and although sometimes (actually most of them) I felt overwhelmed with the amount of information being presented here every single day, I was able to focus on what was helpful for me, for the things I wanted to do.

This community really matters. Besides the amazing (and overwhelming) content

@Nate Herk

shares, there are other folks that are mentors, or at least I adopted them as such, people like @sam-alder-7095 and

@Chris Jadama

. The reason I am writing about this is because I wanted to share a story of what I would consider a win, which is using the lessons I learn from Nate to add value for people with rare diseases. So here is the story, I hope it't not boring.

It started with a tweet. Miriam, a patient with ultra-rare metastatic breast cancer, had accumulated nine years and almost 280 medical documents that nobody had ever seen together. Javi López, a developer, spent a week applying an adversarial AI methodology to her case and shared it openly. I read it and thought: this should exist as a tool.

So I built MedSynth. Two AI models debating each other across eight rounds, analyzing a patient's full medical history and converging on structured findings. It worked. But someone with a regulatory background went through the code and showed me exactly where the risk lived. People in desperate situations were going to use this to make medical decisions. It was not ready for that. MedSynth is still paused.

Meanwhile, Miriam told me what she actually needed: her 278 PDFs converted into clean, portable, verifiable data. Not a 1000-page PDF nobody can process. Her words: "my data curated so anyone with an LLM project can use them, and not one comma can change."

That became the pipeline. Every PDF extracted, anonymized, structured, and verified before being committed to a private repo. Then a wiki layer: an LLM reading all 278 documents and compiling thematic pages covering her full timeline, treatments, lab trends, imaging, clinical trials. Every claim cites its source.

Then the webapp, BeyondTheProtocol. A clinical dashboard with automated alerts, lab trends, treatment history, a RAG assistant that always cites which document it is pulling from, and a full archive of every anonymized file.

I find this work fulfilling because Miriam is a real person, fighting hard, and she trusted me with nine years of her medical history. That is not a small thing.

Thank you for taking the time to read this.

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