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Coeliac Wellness Community

300 members • Free

1 contribution to Coeliac Wellness Community
Newbie here
Hi everyone, I am very new to this and I’m currently stuck in the initial ‘feeling lost’ stage. I was originally tested for coeliac in 2017, as a blood test came back showing ‘positive’, however the endoscopy came back negative. Fast forward several years, my symptoms are worse, and at my post-op check up for my endometriosis surgery, I ask about endometriosis on the bowels. After listening to my symptoms, she felt I had IBD. More blood tests and a positive endoscopy later, I got my diagnosis just before Christmas. Marsh 1 coeliac disease. I did extensive research before my diagnosis, yet I still feel at a loss, I have no clue how to navigate this. Since being diagnosed and going gluten free, I have put on so much weight, now avoiding gf snacks full of sugar. I have since started my own baking due to the sheer cost of gf treats🥲 I am extremely fatigued ALL the time! I joined this group to see if others could help. I am open to your go-to’s, your ‘must avoids’, quick snacks for on the go that aren’t full of sugar, best places to shop, and anything that will get me through the day without falling asleep standing up! Any advice, tips and tricks are absolutely welcome!
2 likes • Jan 12
@Sophie Sion Byde thank you! It sounds like I just need to give my body time to heal and hopefully things will start to settle down more. Is craving sweet things a symptom of celiac? because I’ve always had a sweet tooth but it’s crazy since going gluten free!
1 like • Jan 12
@Bryony L thank you this was really useful! Funny as I bought phish food yesterday!😂
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Rebecca Cunningham
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@rebecca-cunningham-2764
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Active 31d ago
Joined Jan 11, 2026
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