Does anyone else experience this? Since my strokes, I’ve struggled with pain, stiffness and tingling in my hands, fingers and toes. What’s strange is that it always seems to get worse around March and September, almost like clockwork. I’m wondering whether changes in the seasons or temperature might play a part. Does anyone else experience this, particularly at certain times of the year? I’d be really interested to hear your experiences.

Apologies for all of the questions this week, but we really value your input. We are working on a hospital information letter which would be tailored to each stroke survivor with key information. I've attached drafts of 2 possible documents which we might use. One was designed by us and the other is from the World Stroke Organisation. Please could you provide feedback on both documents to help guide us in producing a final document which will hopefully be the best of both worlds.

Sorry Got a bit overwhelmed then and pressed the leave button Well done @maggie. It’s not easy presenting in teams

Hi everyone, After listening to all of your feedback and all of our meetings over the last year or so we have broadened our understanding of what Stroke-Proof is about and come to see that we need to go much further than just prevention. Maggie and I are keen to write Stroke-Proof the book as a guide for Stroke survivors to help navigate the situation they find themselves in post stroke, but we need your help to get it right. We will be pulling in other professionals to help us write this and we'll need you all to tell us if what we are writing is helpful, but firstly we need to make sure we cover the correct areas. After reflecting on all that we have learned from you the below are our proposed chapters. Please let me know if these look right to you or if you think we should add or remove any sections or change the order. Part 1: The Beginning of Recovery 1. A Message of Hope - Recovery is possible - The brain can adapt and rewire - Progress often continues for months and years - Setting realistic expectations - Finding purpose after stroke 2. You're Not Alone - Stroke survivor stories - Different ages and stroke types - Lessons learned from recovery - Common emotional experiences 3. Finding Support - Stroke Association - Different Strokes - Stroke Proof - Online communities - Family and carers - When and where to seek help Part 2: Understanding What Happened 4. What Is a Stroke? - Ischaemic vs haemorrhagic stroke - TIA - What happens inside the brain - Areas of the brain and how they impact symptoms in stroke - Why symptoms vary between individuals - Dementia - the other major brain health condition  5. Tests and Investigations - CT brain - CT angiography - CT perfusion - MRI - Carotid ultrasound - Echocardiogram - Heart rhythm monitoring - Blood tests - What doctors are looking for 6. Why Did My Stroke Happen? - Causes of stroke - Blocked arteries - Atrial fibrillation - Small vessel disease - Rare causes - When no cause is found

Good afternoon. Over the past couple of weeks Steven and Kevin have been helping us by giving us feedback on the first 2 stroke education sessions that we have been running. We've decided to make the third session online so we can see how well that works too. We'd like to invite everybody on here to the online session to get your feedback on it and help us to develop these sessions for future stroke survivors. The session will be on Thursday at 1pm and there will be a link in the Calendar section of the Skool app/website. Hope to see you there!