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❤️ START HERE ❤️
Welcome to the PANDAS & PANS Parent Education Group. If you're here, you're not waiting for someone to hand you a protocol. You want to understand what's actually happening inside your child, and you're willing to do the work to get there. This is a research and education community. Everything in it is built so you can see your own child's picture clearly instead of guessing at it. 👉 Start in the Classroom The Symptoms vs Systems series is the foundation for everything else in here, and it covers why the PANDAS and PANS picture is usually incomplete, what's happening in a body that won't recover the way it should, and why standard labs keep coming back normal when your child clearly isn't. Watch those in order. Everything else builds on them. This group is relatively new so I'm still adding more content, research, courses and resources. If you haven't already, take a look at the Herx vs CDR and other guides in the Tools & Resources classroom to help you through your current treatments as a start. Now, please introduce yourself! Drop a comment below. Tell me what brought you here, and what's the one thing you most want to understand now? I'm so happy to have you here.
What do you need now?
All day yesterday in my region we had a huge amount of rain and then a power outage last night for at least 6 hours or more. This morning I'm seeing post after post on Facebook about flooded basements, and in some homes the water came up through the toilets. That's sewage. Endotoxins, not just mold and biotoxins, and they drive immune activation on their own. Most people have no idea how dangerous this is to their health. Water sitting in an enclosed space for 48 hours is all it takes. After that, microbial growth follows, whether anyone can see it or not. For PANDAS and PANS kids, the very first step to recovery is getting into a clean environment. We cannot heal in the environment that made us sick. If you watched the first video series, Symptoms vs Systems, you'll understand that toxic load is the reason our kids are getting sick. And water damaged buildings are a big part of that load. One of the biggest missing pieces in the PANS and PANDAS treatment world is the foundation in the CIRS world. Every single CIRS protocol starts the same way: Dr Nathan, Dr Crista, Dr McMahon, Dr Holtorf, Dr Shoemaker, Dr Hoffman - all of them. Different treatments, different sequencing, different opinions on almost everything else. But every one of them removes the exposures before treating anything. And that includes biotoxins. Nobody argues about that part. You cannot detox a child faster than a building is loading them back up. I know how impossible that feels when you're in the middle of a crisis. When my son, Jayden was in extreme flares for years, I was trying to hold my family together and figure out how to clean up our environment at the same time and that was traumatizing on its own. I have so much information to give you and help guide you through this illness. But I want to give you what you need most RIGHT NOW. Tell me what you need first.
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Where are you in your P/P journey now?
Every parent is in a slightly different place. Some of you may only be a few weeks into this and still trying to get a doctor to take you seriously. Others are years in and going nowhere. The resources I'm working on next depends on which of those is more important for you now, and right now I'm guessing. Pick whichever is closest. If none of them fit, tell me in the comments.
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PANDAS & PANS Parent Education
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For overwhelmed PANDAS and PANS parents. Research, tools and community to help you understand the biology so you can lead your child out of this.
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