User
Write something
Poolside Chat is happening in 26 days
Pinned
Welcome Aboard!
We’re so glad you’re here! This is a safe, supportive space where caregivers can connect, learn, and navigate the dementia journey together. To start, let’s get to know each other! Drop a comment below and share: ✨ Your name & a fun fact about you (optional!) ✨ Your biggest challenge as a caregiver right now ✨ One thing that helps you get through tough days Whether you’re new to caregiving or have years of experience, your voice matters here. Let’s support and uplift each other! 💬👇
Jocelyn's Thursday Thought
The things outside of you are not as powerful as your mind believes. They do not ultimately control you. This doesn't mean they aren't influential. It means they don't have the final say in who you are, what you experience, or what you choose to do next. This is something I'm constantly reminding people (and myself.) But that's only part one. Part two is equally as important if not more important to understand. It's that you are much much much MORE powerful than your mind believes. You have so many options. So much control. So much more power than you realize. In any situation you have choices. In any circumstance you have power. You should be walking around feeling very excited about what's possible. Full of ideas about what you want to create in your life next. Lit up with desire about the life ahead of you. If your not feeling this way on the regular, your mind is just not seeing the truth. Mine forgets the truth too at times. And unfortunately this is the norm. Most people have it backwards. They think their life has to be great to believe it's possible to have a great life. So don't feel bad ...just decide to do something about it. Decide today to flip the script. If you need help..I'm here. Have a beautiful week! I love you all, Jocelyn
0
0
11 Million Americans Do This Job for Free
There are over 11 million unpaid dementia caregivers in the United States. They provide an estimated 18 billion hours of care per year. The economic value of that care: over $340 billion annually. And nobody is taking care of them. I see it in my clinic every week. The patient comes in with their spouse or adult child. I assess the patient. I adjust medications. I update the care plan. Then the caregiver walks out looking more exhausted than the patient. What the research shows about dementia caregivers: They are 2x more likely to develop depression ↳ They have higher rates of cardiovascular disease ↳ They report worse physical health than non-caregivers ↳ They have higher mortality rates ↳ 1 in 3 report symptoms of anxiety The average dementia caregiver provides 30+ hours of unpaid care per week. Many provide 40-60. On top of their own jobs, families, and health needs. What breaks my heart: Most caregivers don't identify as caregivers. They say "I'm just taking care of my mom." They don't seek support because they don't think they qualify for it. By the time they reach burnout, their own health has already been damaged. What I've changed in my practice: I now assess the caregiver at every visit. Not informally. Formally. How are you sleeping? Are you eating regular meals? When did you last see your own doctor? Do you have anyone who can give you a break this week? If I can't take care of the caregiver, I can't take care of the patient. They're a unit. What every caregiver needs to hear: You are not selfish for needing help. You are not failing if you feel overwhelmed. Your health matters too, and neglecting it doesn't help anyone. Respite care exists. Adult day programs exist. Support groups exist. Asking for help is not giving up. It's the smartest thing you can do. The system is not designed to support you. That doesn't mean support isn't available. It means you have to look for it. And the people around you need to look for you. This is one of my biggest arguments for earlier diagnosis - bringing in the cavalry to support the patient AND their support system. Otherwise, we see family structures breaking down and increasing distance between aging loved ones and the rest of their families.
0
0
11 Million Americans Do This Job for Free
I Told Her She Can't Drive Anymore
The hardest conversation I have isn't about diagnosis. It's about driving. Helen, 78. Former high school principal. Sharp personality. Strong opinions. Drove herself to every appointment. Her daughter came to see me privately the week before. "She got lost driving to the grocery store she's been going to for 30 years. She came home 2 hours late and couldn't explain where she'd been. I'm terrified but she won't listen to me." Helen's cognitive testing confirmed moderate impairment in attention, processing speed, and visual-spatial function. The exact domains you need to drive safely. I had to tell her. "Helen, based on your testing, I don't think it's safe for you to drive right now." She looked at me like I'd taken something from her. Because I had. Independence. Autonomy. The ability to go where she wants, when she wants, without asking anyone for help. For many of my patients, losing driving privileges is harder to accept than the dementia diagnosis itself. The car keys represent everything the disease is taking. What I've learned about this conversation after having it hundreds of times: 1. Don't delegate it to the family ↳ When the doctor says it, it carries clinical authority ↳ When family says it, it becomes a fight ↳ The family has been arguing about this for months before they reach me 2. Be direct but not cold ↳ "Based on your testing, driving is not safe right now" ↳ Not "you can never drive again" (some patients improve) ↳ Acknowledge what you're asking them to give up 3. Have a plan before you have the conversation ↳ Transportation alternatives ready (rideshare, family schedule, community resources) ↳ Retesting timeline so they have something to work toward ↳ Occupational therapy driving evaluation as a next step if borderline 4. Document it clearly ↳ Many states require physician reporting ↳ Liability exists if you know and don't act ↳ The medical record protects everyone Escalating can almost always be avoided. I can count on 2 hands how many times I've had to intervene with licensing rather than have a patient voluntarily retire from driving.
0
0
I Told Her She Can't Drive Anymore
Your Five Senses and Dementia Risk
Your senses are connected to your brain health in ways most people don't think about. Most of the attention has gone to hearing. And for good reason. Hearing loss has the strongest evidence as a modifiable dementia risk factor. But the Lancet Commission's 2024 update added a second sensory risk factor: untreated vision loss. Here's where each sense stands in the research: Hearing: the strongest evidence ↳ 7% of all preventable dementia cases attributable to hearing loss ↳ On the Lancet risk factor list since 2020 ↳ ACHIEVE trial showed 48% slower decline in high-risk group with hearing aids Vision: newly recognized ↳ 2% of preventable cases attributable to untreated vision loss ↳ Added to the Lancet list in 2024 ↳ Meta-analysis of 6.2 million adults: 47% higher dementia risk with vision loss ↳ Cataracts alone carry a 17% increased risk. Diabetic retinopathy: 34%. Smell: an early warning signal ↳ Loss of smell is one of the earliest biomarkers for Parkinson's and Alzheimer's ↳ Not yet on the Lancet list as a modifiable risk factor ↳ Research is active and growing Taste and touch: emerging connections ↳ Taste changes are reported in early dementia, possibly related to nutritional decline ↳ Peripheral neuropathy (especially diabetic) connects to vascular dementia pathways ↳ Both need more research before clinical recommendations Why vision loss matters for the brain: 1. Sensory deprivation ↳ The visual system is the brain's most demanding input channel ↳ Reduced input means less neural stimulation and eventual atrophy 2. Social withdrawal ↳ Vision loss makes reading, driving, and navigating social situations harder ↳ People pull back from activities, which triggers social isolation ↳ Isolation is itself a separate dementia risk factor 3. Shared vascular pathways ↳ The same conditions that damage brain blood vessels damage retinal vessels ↳ The eye and the brain share a blood supply The encouraging part: An estimated 90% of vision loss is treatable with existing, cost-effective interventions.
0
0
Your Five Senses and Dementia Risk
1-30 of 198
The Dementia Lifeboat
skool.com/dementia-lifeboat
Dementia Care Support & Expert Guidance.
Powered by