Hi fellow warriors! ✨ Just a quick update on my journey. I took an integrative approach to my last protocol, combining radiation with fasting, HBOT, repurposed drugs, RLT, and a GKI-friendly diet. I’m happy to share that I’ve achieved a “near complete” treatment response. This result surprised my oncology team, especially since I opted out of standard “Total Neoadjuvant Therapy” (avoiding Oxaliplatin). Because there’s still some scar tissue and inflammation, I’ll need a sigmoidoscopy to see how much of Shrimpy Boy is actually left (if any). I’m hoping it’s actually inflammation of surrounding tissues. 🤞 Now I’m moving into a “watch and wait” phase, supported by my oncologist’s knowledge that radiation’s impact can continue to work on tumour cells for months, especially when supported by metabolic therapy. I’m staying patient and vigilant, hoping that this is either a full response or one that will become “complete” very soon. Part of me just wants to fast the shit out anything left, but with knowledge that autophagy can also be weaponised by cancer cells, I’ve decided against this. Best of all I’ve avoided the “near certain” side effects of pelvic radiation—no burns, no bowel issues, and my fertility is intact. I know this might not last forever and I’d be delusionally optimistic to not expect late-onset side side effects. I’m not sure how much longer I’ll stay away from antioxidants due to the “antioxidant paradox”, which ultimately led to my decision to pause Vitamins C, A, E, and CoQ10 during the seven weeks of radiation. Because they act as free-radical scavengers, reintroducing them could risk lowering ROS within the cancer cells, inadvertently shielding Shrimpy Boy from continuous DNA damage over time. I acknowledge that not everyone agrees with pausing antioxidants and that the data remains highly conflicting. Ultimately, this was a decision made strictly for my own peace of mind, rather than an assertion of personal expertise (and is NOT medical advice).

Joining this community to feel less alone as we walk through DIPG with our 12-year-old daughter Isla. Please keep her in your prayers. ❤️