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Cancer Warriors Vault

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Cancer Warriors

527 members • Free

159 contributions to Cancer Warriors
Update - completion of radiation
Hello warrior fam! 👋 Sorry I’ve been quiet for the last few months. The loss of fellow warriors in this group (and also in my community on Insta) has profoundly impacted me and lead to deep reflection about the unfairness and inequitable outcomes of cancer and mortality. I felt like any update I post would seem trivial and unhelpful during this difficult time for many of you. Although I REALLY didn’t want to, I ended up accepting some standard of care and integrating radiation into my latest intense protocol. The reason for this was financial stress, tumour growth for the first time in 2.5 years, and knowledge that my cancer cells have down-regulated Heat Shock Proteins (which in theory makes them more sensitive to radiation). I chose long-course, low dose radiation (25x1.8Gy) and integrated sensitisation strategies, such as daily HBOT, intermittent fasting and a few repurposed drugs prior. For recovery and minimising side effects I’ve been doing RLT, hydrogen therapy, CDS, while maintaining a high level of ketones as they have anti-inflammatory effects (especially β-OHB which reduces oxidative stress in healthy cells). Today was my final fraction. Initially I negotiated 15 due to fear of both the short and long term side effects, but as I’ve tolerated it so well I decided to have the full 25. I am very lucky to have been referred to a new radiation oncologist who has been open to personalising the treatment and genuinely curious about the potential of HBOT, fasting and the ketogenic diet. Radiation to the pelvis in women nearly always results in infertility and induces early menopause. General side effects also include proctitis, incontinence, rectal inflammation and pain, fibrosis, etc. I’m very shocked to report I am yet to experience any side effects, with the exception of the two days I decided not to fast, didn’t do HBOT, and drank coffee and ate a typical western breakfast. I had to know for sure that the adjunctive modalities I’ve implemented have been truly effective and not placebo, so this is why I experimented with what a “typical” patient (ignorant about the impact of GKI) would likely eat. On those two days (and two days after) I had extreme fatigue and a little irritation in the rectal mucosa. As a result of this, I did a 3 day consecutive fast to try to stop the progression of the side effects and lo and behold… they went away! Unfortunately, prolonged fasting wasn’t / isn’t possible as weight loss impacts the accuracy of the markings and measurements needed for precision radiation (and I certainly don’t want ionising gamma rays blasting non-tumorous rectal mucosa and causing a secondary cancer through oncogenesis of healthy epithelial cells).
Update - completion of radiation
3 likes • 3d
@Fitch T cruelty dressed up as purity - that is the best thing I’ve heard all week. You really have a way with words. Thank you so so much! 🙏
1 like • 2d
@Lindsay Harrison fasting is a double-edged sword and not for everyone. So don’t feel like you’re not “tough” enough. Some people find it harder to produce a lot of ketones due to gluconeogenesis. I’m also very active, so that probably adds to it.
I need your help.
This is one of the hardest things I’ve had to write. As many of you know, Cancer Warriors started because of my mum. Everything I’ve shared here, everything I’ve learned it was all to help her and others along the way. She fought so hard. Even through years of mental health struggles, trauma, loss, and eventually cancer, she kept going. She changed her lifestyle, quit smoking, improved her diet, stayed active, and never stopped trying even when things were hard mentally. We had hope. Real hope. She had just started a new protocol we believed in through Astron Health. And then everything changed very suddenly. She developed acute gastrointestinal symptoms, was admitted to hospital, and within a short period things escalated in a way that still doesn’t fully make sense to me. The initial diagnosis was ischaemic colitis, and she received treatment with IV fluids and anticoagulation. Then: - her markers improved - her pain improved - her circulation improved But at the same time: - inflammation was rising and remained extremely high (CRP 14 on admission, then 400 later) - her oxygen levels worsened before later improving - and concerns we raised about possible contributing factors were not fully explored at the time, despite the acute onset of symptoms, confirmed COVID infection, hypoxia, and rising oxygen requirements which raised concerns about possible severe COVID-related lung involvement. Over time, things progressed to a bowel obstruction, and we lost her. The two CT scans during her admission showed a very different picture overtime, with significant progression. I was there every day. I stayed in the hospital for 14 days. I never left. I slept next to her. I asked questions, I researched, I pushed where I could. And now I’m left with a lot of unanswered questions. Questions that I feel I owe it to her to understand. There were also periods where her inflammatory markers were extremely high and her oxygen levels dropped significantly. This raised questions for me about whether all possible causes of her deterioration were fully explored at the time, and whether earlier or different intervention could have made a difference.
2 likes • 5d
@Bernardo Henriques what the hell?! To see your own mother’s records. That’s disgusting! Zero humanity and stinks of an attempted cover up. To be defensive when someone has lost their mother is the lowest of lows. Fuck them!
2 likes • 4d
@Egg Scrambled wowwwww that says a lot
How tumor hypoxia impacts cancer treatment - Dr Casey Peavler
https://youtu.be/AvFJU5s5AKs?si=DjC23Spsh3qUnjrb Cancer sufferers online indicate that hyperbaric oxygen can cure cancers. I know of no one first party to me who used hyperbaric oxygen. The mother of my children was unable to use hyperbaric oxygen for many months after her brain cancer surgery due to oncology team indications that it risked brain bleeding and the hyperbaric oxygen provider declining to treat for this reason, and thereafter declined it for various medical risk trade-off reasons and lack of interest. I encouraged her to use the portable oxygen generator that he had, but she said it was too noisy and interfered with her sleep. She has passed on.
1 like • 15d
@Michael Wright I will post in detail once I’ve finished the course of radiation. I haven’t told many people about chlorine dioxide as it’s one of the most controversial (but misunderstood and unfairly demonised) multi-purpose treatments and info is also heavily censored by most governments. It is definitely possible I will get radiation side effects later. But somehow I have more energy now than before I started radiation. The only difference is HBOT 4-6 days a week and drinking chlorine dioxide solution (CDS) water consistently. Of course, fasting prior to radiation may be protecting healthy cells as they are less metabolically active, plus low GKI diet and repurposed drugs etc. are also still part of this protocol. And I won’t know the extent of hypoxia reduction until 4-5 weeks after the last radiation session. But typically by session 10-15, according to the radiation oncologist, there is fatigue, skin irritation, burning urination, loss of bowel control etc. But I have almost boundless energy and am sleeping the best I have in months. It’s weird!
0 likes • 14d
@Odette Rocha thank You! 🙏
Journey
This is a difficult journey. I haven’t shared much, Ive read quite a few of comments. I’ve been on here because my daughter was fighting cancer. She gave it all she had. She did keto, hyperbaric, red light therapy, combined it with SOC. Maki’s Meekim, everyone. And anyway, yesterday she breathed her last breath and entered eternity. Our hearts are broken, there was nothing on earth she did that stopped it. However she had a quality life up to August 8 I think, then things just kept coming. Somehow a positive challenge that could come out - I would love to see integrative medicine and SOC work together and wonder if anyone would have an idea of how we could move forward and work towards this? Don’t know what else to say but I do pray for you all fighting this disease and am grateful for every success story. And am so sad the ones that have been heartbroken and lost their loved ones. It is truly gut wrenching and very sad God bless you all!
3 likes • 15d
I’m so sorry Gwen, outcomes seem so unfair and inequitable - some people throw everything at it and others make absolutely no lifestyle changes and manage to pull through. A friend of mine was having success gradually shrinking multiple Mets (metastatic breast cancer) and stacked so many treatments and was so disciplined. Out of nowhere she was rushed to hospital for emergency surgery due to abrupt pain. To our shock and horror all the Mets returned plus more and it spread to the spine. It’s a reminder that metabolic therapy is rarely curative - it’s a tool in a kit that will usually require SOC. I was stubborn for a long time and declined for nearly 3 years, but got complacent. I recently added SOC after my first (and abrupt) incidence of tumour growth. It’s been very hard educating mainstream practitioners on the benefits of ketones and exploiting cancer metabolism (e.g. with repurposed drugs, specific nutraceuticals, strategic fasting and a low GKI diet) as they’re so time-poor. I’ve found my general oncologist and radiation oncologist are both open to learning, good listeners, and non-judgemental, but because none of their previous patients have asked for lower doses of chemo and radiation - nor have have they done any lifestyle intervention - they don’t have any data to support going outside the scope of practice. So what I’m doing (radiation in a fasted state after HBOT for sensitisation, plus repurposed drugs, ketogenic diet, CDS, etc.) they deem as “experimental” and wouldn’t document in a case report. But two systems coexisting has to be the future in terms of reducing side effects, costs and logistical challenges. If my outcome is positive I will certainly do my best to advocate for the dichotomy between standard and alternative to be reduced. It’s the least we can do for warriors like your daughter who did everything right on paper, but it tragically didn’t change the outcome. Even Prof. Seyfried has become more conservative in recent interviews about the potential of metabolic therapy because it’s not only not curative for most people, but so many people are still declining rapidly. I used to blindly defend press-pulse until we started losing warriors in this group. Now I know better and maybe it’s just sheer dumb luck (not my DYI protocols) that I’ve had no metastasis and only one incidence of growth. I won’t take it for granted anymore. 🫶
RGCC
Anyone ever try the RGCC test ? I’m really interested. It’s $2,500 . A blood test sent to Greece for your specific cancer analysis. From what I was told, they find out exactly where your cancer originated and how. They test many different immunotherapies until they find one that kills the cancer cells specific to you . It really sounds promising.
0 likes • 24d
@David Stern yes it’s very expensive to do HBOT unfortunately
1 like • 24d
@David Stern they are all generally considered universally good choices in the context of cancer care.
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Lisa Drake
6
334points to level up
@lisa-drake-4174
35 YO 🇦🇺/🇨🇦 who lifts & kicks cancer’s ass with KD, herbs, HBOT & more ReDO drugs than yo neighbourhood dealer!🏋️🥩💊🌿 Instagram: lisamarydrake

Active 8h ago
Joined Aug 10, 2024
Melbourne
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