This group exists so no one has to walk this path alone. Share as much or as little as you feel comfortable: - Your diagnosis or a loved one’s journey - What brought you here - Questions you’re exploring - Therapies or strategies you’re researching - Or even a photo — faces help turn stories into connection Every share matters. It helps others feel less isolated and strengthens the collective wisdom of the group. 📌 Post Categories — How to Share To keep the community organised and easy to navigate, please choose the category that best fits your posts: 📢 Announcements: Official updates from the Admin team. 👋 Introductions: Say hello and share as much (or as little) as you’re comfortable with about your journey. ❓Questions: Questions and thoughtful answers from the community. 💬 General Discussion: Open conversation on cancer, healing, mindset, and community-related topics. 💡Research & Protocols: Research, studies, resources, protocols, and learning materials. 📝 Journeys & Experiences: Personal stories, protocols being explored, progress updates and testimonials. ❤️ Community Lounge: Anything that doesn’t clearly fit another category. If you’re unsure, don’t worry — just choose your best guess. The goal is sharing, learning, and supporting each other, not perfection.

Red light therapy (RLT), particularly in the form of photobiomodulation (PBM), has gained attention as a potential adjunctive treatment for neurological diseases and cancer, including brain cancer. The combination of red light (or near-infrared light, NIR) with methylene blue (MB) is an emerging therapeutic strategy aimed at enhancing mitochondrial function, reducing oxidative stress, and potentially promoting cancer cell apoptosis. Below is a critical evaluation of this approach. 1. Mechanism of Action A. Red Light Therapy (Photobiomodulation) Photobiomodulation (PBM) involves the use of red (600–700 nm) or near-infrared (NIR, 800–1100 nm) light to stimulate mitochondrial function and cellular metabolism. Its primary mechanisms include: - Cytochrome c Oxidase (Complex IV Activation): PBM enhances ATP production by stimulating cytochrome c oxidase (CCO) in the mitochondrial electron transport chain. - Reduction of Oxidative Stress: PBM can reduce reactive oxygen species (ROS), modulate inflammatory cytokines, and protect healthy cells from oxidative damage. - Neuroprotection & Cellular Repair: PBM has been studied for neurodegenerative diseases like Parkinson’s and Alzheimer’s, suggesting potential neuroprotective benefits in brain cancer. B. Methylene Blue (MB) in Cancer Therapy Methylene blue is a redox agent that can act as an alternative electron carrier in the mitochondrial electron transport chain, enhancing cellular respiration. Its effects include: - Enhancing Mitochondrial Function: MB donates electrons to Complex I and III, bypassing mitochondrial dysfunction often seen in cancer cells. - Selective Cytotoxicity in Cancer Cells: MB may increase oxidative stress selectively in cancer cells, leading to apoptosis while protecting healthy cells. - Photosensitization: MB absorbs red/NIR light, allowing it to act as a photosensitizer, generating singlet oxygen and free radicals that can induce cancer cell death. 2. Evidence for Red Light Therapy in Brain Cancer

Hello warrior fam! 👋 Sorry I’ve been quiet for the last few months. The loss of fellow warriors in this group (and also in my community on Insta) has profoundly impacted me and lead to deep reflection about the unfairness and inequitable outcomes of cancer and mortality. I felt like any update I post would seem trivial and unhelpful during this difficult time for many of you. Although I REALLY didn’t want to, I ended up accepting some standard of care and integrating radiation into my latest intense protocol. The reason for this was financial stress, tumour growth for the first time in 2.5 years, and knowledge that my cancer cells have down-regulated Heat Shock Proteins (which in theory makes them more sensitive to radiation). I chose long-course, low dose radiation (25x1.8Gy) and integrated sensitisation strategies, such as daily HBOT, intermittent fasting and a few repurposed drugs prior. For recovery and minimising side effects I’ve been doing RLT, hydrogen therapy, CDS, while maintaining a high level of ketones as they have anti-inflammatory effects (especially β-OHB which reduces oxidative stress in healthy cells). Today was my final fraction. Initially I negotiated 15 due to fear of both the short and long term side effects, but as I’ve tolerated it so well I decided to have the full 25. I am very lucky to have been referred to a new radiation oncologist who has been open to personalising the treatment and genuinely curious about the potential of HBOT, fasting and the ketogenic diet. Radiation to the pelvis in women nearly always results in infertility and induces early menopause. General side effects also include proctitis, incontinence, rectal inflammation and pain, fibrosis, etc. I’m very shocked to report I am yet to experience any side effects, with the exception of the two days I decided not to fast, didn’t do HBOT, and drank coffee and ate a typical western breakfast. I had to know for sure that the adjunctive modalities I’ve implemented have been truly effective and not placebo, so this is why I experimented with what a “typical” patient (ignorant about the impact of GKI) would likely eat. On those two days (and two days after) I had extreme fatigue and a little irritation in the rectal mucosa. As a result of this, I did a 3 day consecutive fast to try to stop the progression of the side effects and lo and behold… they went away! Unfortunately, prolonged fasting wasn’t / isn’t possible as weight loss impacts the accuracy of the markings and measurements needed for precision radiation (and I certainly don’t want ionising gamma rays blasting non-tumorous rectal mucosa and causing a secondary cancer through oncogenesis of healthy epithelial cells).

This is one of the hardest things I’ve had to write. As many of you know, Cancer Warriors started because of my mum. Everything I’ve shared here, everything I’ve learned it was all to help her and others along the way. She fought so hard. Even through years of mental health struggles, trauma, loss, and eventually cancer, she kept going. She changed her lifestyle, quit smoking, improved her diet, stayed active, and never stopped trying even when things were hard mentally. We had hope. Real hope. She had just started a new protocol we believed in through Astron Health. And then everything changed very suddenly. She developed acute gastrointestinal symptoms, was admitted to hospital, and within a short period things escalated in a way that still doesn’t fully make sense to me. The initial diagnosis was ischaemic colitis, and she received treatment with IV fluids and anticoagulation. Then: - her markers improved - her pain improved - her circulation improved But at the same time: - inflammation was rising and remained extremely high (CRP 14 on admission, then 400 later) - her oxygen levels worsened before later improving - and concerns we raised about possible contributing factors were not fully explored at the time, despite the acute onset of symptoms, confirmed COVID infection, hypoxia, and rising oxygen requirements which raised concerns about possible severe COVID-related lung involvement. Over time, things progressed to a bowel obstruction, and we lost her. The two CT scans during her admission showed a very different picture overtime, with significant progression. I was there every day. I stayed in the hospital for 14 days. I never left. I slept next to her. I asked questions, I researched, I pushed where I could. And now I’m left with a lot of unanswered questions. Questions that I feel I owe it to her to understand. There were also periods where her inflammatory markers were extremely high and her oxygen levels dropped significantly. This raised questions for me about whether all possible causes of her deterioration were fully explored at the time, and whether earlier or different intervention could have made a difference.

I’ve been thinking a lot after everything that’s happened recently with my mum. The hospital situation, the pneumonitis, the uncertainty… it forces one to step back and really see things clearly. So I wanted to share a few things I’ve learned through this journey, things I think a many of us overlook. Consistency matters more than having the perfect protocol. Timing actually makes a big difference (press and pulse isn’t just theory). It’s not just about throwing everything at cancer, it’s about combining things intelligently. Supporting the immune system is just as important as targeting the cancer itself Inflammation can completely change the picture (and mislead you if you’re not careful). I’m more convinced than ever that cancer is heavily metabolic, not just genetic. Targeting the relevant pathways and drivers of your specific cancer seems far more powerful than focusing on one. A lot of therapies work better when timed properly (HBOT, IV Vitamin C, etc.) The “terrain” (inflammation, gut health, immune function) plays a massive role… Tumour markers like CA125 can spike from inflammation alone so context is everything. I’ve seen how easy it is for people, including me at times, to overcomplicate things… Burnout is real and this is a long game… Tracking symptoms alongside labs gives a much clearer picture. Gut issues (especially after antibiotics or infection) can set things back more than expected… Simple and consistent beats complex and inconsistent every time. Timing and synergy matter more than people think. Never ignore inflammation or gut health. Don’t panic at one data point and always look at the full picture. This is a marathon, not a sprint. Try to remain calm/grounded and avoid negative thoughts if possible, the mind is quite tricky. The role of the mind matters more than we think. Whether you call it belief, faith, mindset, or even the placebo effect, there’s something powerful there that shouldn’t be ignored. I’ve seen how much perspective, hope, and inner state can influence how people go through this journey.