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8 contributions to Dementia Caregiver Collective
The Accusation Isn’t the Truth
Sometimes your loved one may say things that aren’t accurate. Accusations. Misunderstandings. Stories that didn’t happen. This can feel deeply personal, but it usually isn’t. The brain is trying to make sense of missing information. So it “fills in the blanks.” Instead of correcting the facts, try focusing on reassurance: “I’m here. You’re safe.” You’re responding to confusion, not teh apparent intent.
1 like • Apr 24
Thank you for that. I will have to stop correcting my mother and realize what she is going through.
Shadowing
If your loved one follows you everywhere… you’re not imagining it. This is called shadowing. It can feel frustrating—or even suffocating at times. But underneath it is something important: They are trying to feel safe. As memory fades, you become their anchor in a confusing world. So when you leave the room, it can trigger anxiety. A small shift that can help: Instead of saying “I’ll be right back," try: “I’m going into the kitchen. You’re safe. I’ll come get you.” Clear + reassuring. Have you experienced this?
1 like • Apr 20
nice switch into supporting security. I love the suggestion.
What’s something that has surprised you about caregiving for someone living with dementia?
Caregiving is full of moments where you think: “Am I the only one dealing with this?” You’re not.
1 like • Apr 20
That they remember at the most unpredictable times.
What has felt hardest lately?
There’s a moment most caregivers don’t talk about. The moment when you realize: “This is harder than I thought it would be.” Not just physically. Emotionally. We’d love to hear from you, please... What has felt hardest lately? (No pressure to have the “right words.” Just real ones.)
2 likes • Apr 15
For me, it is not being able to handle the extra time it takes to do things. Everything is more complicated and takes up so much more time than before. This causes stress because time management is always off.
What's a question you hear repeated often?
One of the most exhausting parts of dementia caregiving is the REPETITION. The same question.Again and again. Even when you just answered it. This isn’t stubbornness. It's not intentional. It’s memory loss at work. The brain is no longer able to store the answer you just gave… so to them, it feels like the first time asking. That’s why correcting or reminding often doesn’t help, and can actually increase frustration. A simple shift that can help: Instead of explaining… try responding to the feeling underneath. “I’ve got it handled. You’re okay.” You’re not trying to fix the memory. You're helping them feel safe.
1 like • Apr 14
that is such beautiful advice and it helps give the care giver a variety or responses to be playful with. It is sometime hard to recognize that they need the reassurance and not the details.
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Dee dee Lee
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@dee-dee-lee-4067
I'm an entrepreneur, the Founder of AI for Everyday People, and a lover of French Bulldogs.

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Joined Feb 18, 2026
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