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Tinnitus Reset Toolbox

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Navigate Tinnitus

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13 contributions to Tinnitus Reset Toolbox
What part of tinnitus has impacted your life the most?
For me, it wasn’t just the noise. It was communication. Back when I was working as a software product manager, my entire day was meetings, conversations, decisions. And suddenly… - I was missing details - Struggling to follow conversations - Losing track when multiple people were talking It honestly felt like I couldn’t do my job the way I used to... That was probably the hardest part for me. But at the same time… That struggle is also what pushed me to: - Understand what was actually happening - Change how I responded to it - And eventually start helping others And somehow, that led to this community. 💙 I wouldn’t call tinnitus a gift. Not by any stretch. But I’ve seen this over and over: 👉 The way we respond to it can either keep us stuck… 👉 or slowly push us to adapt, grow, and regain control I'm curious about you: 👉 What has been the hardest part of tinnitus (or TTTS, hyperacusis, etc.) in your life? I'd really love to hear your experience. 🙏
What part of tinnitus has impacted your life the most?
2 likes • 2d
It is the constant noise which can be distracting, I miss the silence. My second challenge is that I can no longer dance and hear the music without ear protection. This is especially hard while dancing Rueda. This is a special form of Salsa where all couples in a big circle have to dance the figures which the "cantante" (lead) is telling. How can I properly lead if I have problems to hear the names of the figures in between the music with ear protectors...
This is what ENTs told me about tinnitus (twice)
When I first developed tinnitus, I went to see an ENT. I was basically told: “Just live with it. There’s nothing you can do.” That was it... 😯 No guidance, no plan, no real support. Of course, it made me feel worse. Some years later, I went back, this time because of TTTS. (middle-ear muscle spasms that can be extremely distressing) Different doctor, same feeling. Again: “There’s nothing you can do.” And then this: “We could cut the (middle-ear) muscle… but we don’t know if it will help. It might make things worse.” Both experiences left me feeling: More anxious More confused And completely on my own Each time, it pushed me into a deep search for answers. Eventually, I figured things out… but not thanks to these visits. 🤷‍♂️ Now I’m really curious about you 👇 What was your experience the first time you saw a doctor for tinnitus, hyperacusis, TTTS, or something similar? What did they tell you? How did it make you feel? Did it help… or make things worse? Let’s share openly, please. I think this will help a lot of people here. 🙏💙
This is what ENTs told me about tinnitus (twice)
2 likes • 2d
I have similar experience with my first ENT visit. I was recommended by my family doctor after having had issues with ear pressure after a flight. The ENT told me that we have the same age und my hearing is much worse than his. I should just live with my Tinnitus and come back in 2 years. He left me very frustrated and anxious. As far as I can remember the Tinnitus increased a lot in volume after this diagnosis. I could not sleep well for month… A couple of month later I went to see another ENT. This time my experience was very good. I was told that my hearing isn’t as bad as I imagined and I could do a lot to improve by myself. I learned to manage my conditions to get better. Looking back my Tinnitus is caused by noise exposure. I am a dancer for 30 years, never had issues. My family doctor missed to inform me that I should especially protect my ears while having Eustachian tube disfunction. I got to know that the hearing is much more exposed to permanent damage in this condition…
Perception Challenge: What Really Happens to Your Tinnitus?
Your tinnitus is at 5/10. You enter a noisy room with music playing. After 5 minutes, your tinnitus feels like: A. 2/10 B. 5/10 C. 7/10 💭 Think carefully: why does your perception change? (Hint: Your brain prioritizes sound input over internal noise.)
2 likes • 15d
C, my brain gets in alarm mode
2 likes • 15d
@Guy Cohen I do not practice relaxation techniques at all. I use sound enrichtment with music and podcasts. In theory I learned that I should not use sound with words. Nature sounds are not ideal for me. I need something that catches the attention of my brain. My tinnitus is noticable. When I am focused at work it is not bothersome. In "flow" mode I do not notice my tinnitus at all. I even forget that the Tinnitus is there. It is more present when I am tired after poor sleep. I got to bed late and wake up early in the morning. Getting asleep is relatively easy for me. I am aware that I should work to improce my sleep routine (regular sleep hours). My Oura ring helps me to keep track of my stress level more than my Apple watch.
🧠 What’s the hardest part of your tinnitus journey right now?
Which one feels the most true for you at this moment? You can share a bit more in the comments, just keep it general, please. It helps me understand where you’re at and I’ll try to point you in the right direction. Or, message me directly with all the details you'd like to include. 👍
Poll
7 members have voted
3 likes • 21d
I am still dealing with issues regarding ear pressure/Eustachian tube ventilation. I went to see my ENT last week. Apart from nasal spray he advised my to start with nasal rinsing for 30 days. If that will not help he mentioned further options like stretching my Euchstachian tubes with a ballon or having an incision in the eardrums...
Who Wants to See Something the Public Doesn’t Have Access to Yet? 👀
I just finished a new tinnitus video that will be released on YouTube tomorrow morning. But I’m thinking of giving early access to the members of this wonderful community first. If there's interest... 🤔 If you'd like to see the video before it goes public, and you're willing to share a little feedback after watching it: 👉 Comment YES below. If enough people are interested, I'll share the private early-access link right here!
Who Wants to See Something the Public Doesn’t Have Access to Yet? 👀
2 likes • 29d
Yes
2 likes • 28d
@Guy Cohen Thanks for sharing the video. I watched the video. It provides good examples for CBT and ACT.
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Domenico Gioffredi
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31points to level up
@domenico-gioffredi-4465
Living in Switzerland

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Joined Nov 29, 2025
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