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The Kidney & Health Club

205 members • $59

5 contributions to The Kidney & Health Club
🥗 This Friday — 1 PM IST | Diet Class #2
We’re doing our second diet session focused on CKD nutrition. We’ll cover: - How to prevent CKD with diet - Diet for Stage 1–3 - Diet for Stage 4 - What actually changes as kidney function declines 💬 Let’s make this personalised To discuss diet properly, we need your numbers. Comment below: - eGFR - Creatinine - Potassium - Phosphate - Calcium We’ll select top 4 members and create a customised diet plan live so everyone can learn. This will be practical — the goal is to help you understand what YOU should actually eat 👍
0 likes • 11d
Ashok kumar egfr 35.64 creatinine 1.9 potassium 4.8 calcium 9 sodium 136 phosphorus 4.1 uric acid 6.9 hba1c 6.5
Request to members
Most of the people here are CKD patients, I would like to know some info from them. It will help all the members. Please respond to the questions in comments. 1. When was their CKD diagnosed and at what Stage ? 2. What was the eGFR numbers at the time of diagnosis? 3. What is the present eGFR? 4. What is the cause of their CKD ? Just want to know if there are any patient here who have managed this for multiple decades at same stage. It might be useful to all of us.
1 like • 14d
@Rishav Kumar Ashok kumar age 76 detected ckd in 2020 with gfr 55. Present gfr 36. Regularly follow up with Nephorologist. Cause may be diabetes/bp
🥗 Special session with our Health Coach & Nutritionist - Thursday 3 PM
This Thursday, we’ll have a special session with our Health Coach & Nutritionist 🙌 @Sonali Makani Kayal What makes this session different is that she is not just teaching from books. She was a caregiver for her mother, who had CKD, and spent years helping manage her diet, appointments, and daily struggles. So she understands: - the emotional side of kidney disease - caregiver stress - practical food problems - and what patients actually go through every day We also have @Alka Phutela who is a nutritionist and has been diagnosed with protein leak. I’m sure many of you will learn a lot from both their experience and guidance 💬 Comment below What specific question would you like covered in the webinar? Examples: - protein confusion - potassium/phosphate foods - Indian diet questions - eating outside - weakness/fatigue - supplements Drop your questions below 👇
0 likes • May 28
Sir my question is whether ckd patient can take alcohol. If yes how much.
New update in kidney treatment
A drug called sparsentan has now received FDA approval for FSGS (Focal Segmental Glomerulosclerosis). This is important because FSGS is a condition where patients often have significant protein leak, and treatment options have been limited. Sparsentan works by targeting pathways involved in proteinuria reduction, and studies have shown it can help reduce protein leak in selected patients. But this is important ⚠️ Sparsentan (FSGS) — who is it for? Key cut-offs (from trials / approval context) - eGFR: generally ≥ 30 mL/min/1.73 m² - Proteinuria: significant protein leak (often UPCR ≥ 1.5 g/g) - Diagnosis: biopsy-proven primary FSGS (not secondary causes) What this means for you It’s a positive step forward in kidney care. But more importantly:Understanding your own reports (protein, eGFR, diagnosis) matters before thinking about treatments like this. New treatments are coming — which is good. But the basics still matter: - controlling BP - reducing protein leak - staying consistent Comment below - what do you think?
1 like • Apr 28
When we expect this medicine in India.
đź‘‹ Introduce Yourself Here
This community is here to help you move from confusion about reports → to clarity and a simple plan. Your first step is very simple. Let’s introduce ourselves so we know who is here and how we can support each other STEP 1 — Introduce Yourself 👇 Comment below using this format: Hi, I’m ______. I’m from ______. My biggest kidney/health concern right now is ______. One thing that would make me feel better is ______. You’ll quickly realise many people here share similar worries about reports and health numbers. STEP 2 — Say Hello to Others 🤝 Reply to 2–3 other introductions. A simple hello, welcome, or word of encouragement can make a big difference. This community works best when we support each other. You are not alone here — and neither are they. STEP 3 — Unlock the 10 Day Kidney Health Challenge 🚀 The 10 Day Kidney Health Challenge unlocks at Level 2 To reach Level 2 faster: • Introduce yourself • Comment on posts • Support other members Once unlocked, go to Classroom → 10 Day Kidney Health Challenge → Start Day 1. In 10 short lessons, you will learn how to:• Understand your health numbers• Improve daily habits• Reduce anxiety about reports• Know your next steps Small steps, taken together, lead to real progress. 💬 Start by introducing yourself below. What kind of support do you need most right now?
Poll
43 members have voted
2 likes • Apr 26
Hi I M Ashok Puri I m from Delhi I am 77 year old CKD grade 3 patient My biggest kidney concern is Protein leak. One thing that would make me feel better is controlled parameters and diet
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Ashok kumar pur Puri
1
1point to level up
@ashok-kumar-pur-puri-9151
I am Ashok kumar Puri Age 77 and grade 3 CKD patient (patient since last 10 year). My EGFR is 38 and creatinine is 1.8.

Active 3d ago
Joined Apr 19, 2026
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