I've just been preparing for doing the next stage of the health testing for both William and Willow. There are 7 test kits here, some of them are being shipped together so I had the opportunity to let loose my organisation skills. I'll be going live to go through what all of these tests are as we're doing them as part of the work with functional medicine doctor and the mould in our home, but some of them could be relevant to kids with other chronic conditions we see a lot of.

My first ever live on this group about the latest recommendations from the States about autism and about my experience trying to get Leucovorin for our William.

The latest advice that I'm currently listening to are no Tylenol or Paracetamol during pregnancy, or as little as humanly possible. Another amazing thing is States-wide recommendation to supply autistic children with Leucovorin which is now recognised to help with the symptoms. This is exactly the off-label drug I've asked for last Friday and was told NO, so I ordered this medication online - waiting for it to be delivered. They also have stipulated to avoid giving children Tylenol or Paracetamol as much as possible. I'll be giving you a full update tomorrow, but this is very exiting for our kids - also if you have a pregnant friend - pass them the message.

After a lot of research on the subject I've decided to ask my GP to prescribe Leucovorin for William. Not holding my breath as in the UK it would be an off-label prescription. Normally this is used for cancer patients to help them deal with the side effects, but it's also been used in autistic kids who have abnormal folate metabolism - the DNA methylation test proves William has just that. I sent him all the lab tests we have had done up to this point as well as some research papers to support my hypothesis on why I think it will help our boy. I've also just started using a vagus nerve stimulation therapy and just about to buy red light therapy machine so keep your eye out on the updates on how these are going! https://nypost.com/2025/03/19/health/kids-with-autism-show-dramatic-improvement-with-cheap-drug/