Discussion Post: The Work of Being Understood
This is the discussion thread for the classroom course article The Work of Being Understood: Autistic Communication. In that article, I open up about one of the deepest frustrations many autistic people face — not the sensory storms or burnout, but the constant effort of making ourselves understood. We ask questions and get mistaken for judging. We clarify and are told we’re arguing. We over-explain and people roll their eyes, not realizing this is survival.
This space is where I want to hear from you. If you are autistic, how has this shown up in your life? Do you find yourself being misread when you’re only reaching for clarity? What strategies have you found for making yourself understood — or for coping with being misunderstood?
If you’re allistic (non-autistic), this is your chance to ask honest questions and reflect on your own communication with autistic loved ones, coworkers, or friends. What surprises you about our perspective? What feels different from how you were taught to communicate?
This thread is for sharing perspectives, frustrations, strategies, and insights. Let’s break down the assumptions and meet each other in the honesty we’re all craving.
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Shiya Hodes
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Discussion Post: The Work of Being Understood
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