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The numbers said one thing. My life said another.
The numbers said one thing. My life said another. Years ago, I was told dialysis was likely just months away. The numbers were concerning. The prognosis was clear. But what nobody explained was how to understand those numbers, what questions to ask, or how to navigate the journey ahead. That's the gap I see so many people facing today. Patients receive eGFR scores.Creatinine levels.Medication changes.Appointment summaries. Yet many leave with more questions than answers. That's why I created the ROSE Score™. Not to tell you how sick you are. To help you understand where you are. To help you recognize what matters, optimize your next steps, sustain healthy habits, and execute with confidence. Because healthcare shouldn't stop at the numbers. Clarity matters. Understanding matters. You matter. 🌹 Take the ROSE Score™ and discover what your numbers may not be telling you: https://www.rosebeyondthenumbers.com/quiz #ROSEBeyondTheNumbers #KidneyHealth #CKD #KidneyDisease #KidneyTransplant #PatientAdvocacy #HealthLiteracy #HealthEquity #ChronicKidneyDisease
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The numbers said one thing.  My life said another.
🌹 Welcome to the ROSE Beyond the Numbers™ Healing Garden 🌹
I'm so glad you're here. Whether you're living with chronic kidney disease, on dialysis, a transplant recipient, a caregiver, or simply looking to better understand your health journey, you belong in this community. The Healing Garden was created to be a place of education, encouragement, support, and action. Here, we believe that while the numbers matter, they don't tell the whole story. 🌹 New Member Checklist ✅ Watch the Welcome Video ✅ Introduce Yourself Below ✅ Take the ROSE Score Quiz- www.rosebeyondthenumbers.com/quiz ✅ Explore the Community Resources The ROSE Score Quiz is a great place to begin because it helps you understand where you currently are in your journey across the four pillars of the ROSE Framework™: 🌹 Recognize 🌹 Optimize 🌹 Sustain 🌹 Execute We'd Love to Meet You Please introduce yourself below and share: 🌹 Your first name 🌹 Where you are in your kidney journey (CKD, dialysis, transplant, caregiver, etc.) 🌹 One thing you hope to learn, improve, or gain from this community 🌹 One positive thing you're celebrating today, no matter how small I'll start: Hi everyone! I'm Tamara, founder of ROSE Beyond the Numbers™. I was diagnosed with chronic kidney disease more than 20 years ago and received a kidney transplant in September 2025. My hope is to create a community where people feel informed, empowered, and supported as they navigate their health journey. Thank you for being here. 🌹 Remember: The Numbers Matter. So Do You.🌹
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🌹ROSE Beyond the Numbers™
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🌹 A kidney health community for CKD patients, transplant recipients, and living donors using the ROSE Framework™.
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