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How I became 'That Lupus Coach'
Everyone has their story and I wanted to share mine with you ❤️ I have been diagnosed with Lupus since July 2021, the story gets easier to tell, but the memory forever feels like it happened yesterday ❤️ Stasia (That Lupus Coach) - YouTube
How I became 'That Lupus Coach'
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Welcome Post
Hello and WELCOME!!!! So excited to have you here and would love to learn a bit about you! Please introduce yourself, share a little or a lot about yourself (totally up to you) and what brought you into the community/hoping to gain from it ❤️ Also your favorite pet (photos are highly encouraged) ☺️
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Welcome to Not Today, Lupus! 💜
I am so glad you’re here!! My name is Stasia and I am the host of this community. I'm a Registered Nurse, living with Lupus since 2021. I know firsthand how overwhelming it can feel when lupus changes the picture of your “normal.” That’s why this community exists, to be a supportive, empowering, judgment-free space where we lift each other up, share tools that actually help, and remind one another that lupus does not define who we are. This is our safe space to focus on what we can do and not just what lupus tries to take from us. Together we rise and say: Not Today, Lupus. 🦋
I never thought I’d be posting this. I am completely shattered.
I’ve spent my life as an emergency doctor, but nothing prepared me for the moment the tables turned. Two days ago, my 7-year-old daughter, Lily, was rushed into the ICU. I am now sitting here watching her fight a severe Lupus flare that has attacked her system with a ferocity I’ve never seen. I’m struggling to even breathe as I write this. I’ve already lost my wife, and Lily is my entire world along with my son. Seeing her hooked up to these machines is pushing me into a darkness I can't describe. I feel like I’m at the end of my rope honestly, I feel like I’m losing my mind and my will to keep going. The isolation of this hospital room is suffocating. I don't use the messaging apps on here much because I’m constantly on my work phone. If anyone has the heart to just be a human connection for a grieving father—if you can send a text or a supportive voice note to help me stay grounded so I don't give up please just comment 'I'm here' below.
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Cortisol
Anyone have any experience with cortisol inhibitors?
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Not Today, Lupus
skool.com/not-today-lupus
This community is for those learning how to redesign their normal living with Lupus and having access to others who are doing the same. Welcome :)
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