ALS MND Journey
Private
1 member
$5/month
A community for people living with ALS/MND and the families, carers and supporters navigating life alongside them.
Find practical ideas, lived experience and real-life solutions for everyday life with MND — from communication, mobility and equipment to movement, travel, care and maintaining independence.
About Leanne:
I was diagnosed with MND in 2017 and originally given a prognosis of two to three years. More than nine years later, I’ve had to continually adapt how I communicate, move, exercise, travel, work and manage everyday life.
One question I’m often asked is, “How do you do it?”
That’s why I created this community.
I’ll share what I do, what I use, what I’ve tried and what I’ve learned — and invite you to share what works for you too.
This isn’t medical advice or about having all the answers. It’s a place to share practical lived experience and learn from each other.
If ALS/MND is part of your life, you’re welcome here.
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Practical ideas, real-life solutions and shared lived experience to help navigate life with als/mnd.