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6 contributions to Chronic Illness Resilience
The affect of Music 🎶
In my worst times of chronic illness I often turned to songs to keep me going, I coined the phrase ‘ “Super Coping” I had: “D Ream - Things can only get better” played on repeat. Sort of a pattern interrupt to those thoughts that can often spiral when you’re struggling. As I learnt to manage a new me, and worked through various treatments, flares and in turn change of career (let’s face it, chronic illness brings into question many things about ourselves) I found a new song. Andra Day - Rise up The tune builds, the words are strong and the purpose is definitely “I can do this” 💪🏻 I’m just curious if music has featured in your super coping moments and indeed in your next chapter ?
2 likes • 5d
@Amy Keith love that 'Music is in our family's blood' it can be so profound and can take you back to a super coping moment that we can map on a new moment and as you mention the same song can take on a completely different meaning depending on where you are in life ❤️ Another little share here, I often find it fascinating how when you are struggling, concentrating, a little unsure, or finding something tricky those that are audio aware, suddenly find a song in their heads to get them through that moment! Sounds bizarre, right, where I once worked, my two colleagues would default to: Indiana Jones them tune - when they had to see something through The A Team theme tune - when they needed to concentrate neither knew where the song came from and how they recalled it, yet at some point in their lives way back it must have served a purpose!
Day 5!
Six months from now, I want to be someone who…
0 likes • 10d
@Alexia Stephanie Greavu Thats great insight, and by far supports a future you. We are all a work in progress, an unfinished masterpiece, a draft, a black and white picture, until we learn to colour it the way we need for us. I aim for steps these days rather than the result, and cheer lead those steps for sure 😀
2 likes • 10d
@Alexia Stephanie Greavu Absolutely! its remembering to do it too. Then I guess until we make it a normal occurrence, we will swing back and forth for a while. There is a comfort some where in the yes.
👋 Welcome to Chronic Illness Resilience
We're so glad you're here. If you've just watched our welcome videos, you'll know this community isn't about pretending chronic illness is easy. And it isn't about staying stuck either. It's about moving forward. Every person here has a different story, but many of us share the same feeling... Life changed, and we're trying to figure out what comes next. That's exactly why this community exists. We believe chronic illness may change your life, but it doesn't have to stop your life. Whether you're here to rebuild your confidence, rediscover your purpose, adapt to a new reality, or simply connect with people who genuinely understand, you're in the right place. We'd love to get to know you. 👇 Introduce yourself in the comments using these three prompts: 1. Where are you joining us from? 2. How long have you been living with chronic illness? (Or are you supporting someone who is?) 3. What's one area of your life you're ready to move forward with? Take a few minutes to read through the introductions and welcome a few other members too. This community grows stronger every time someone reaches out. Welcome to Chronic Illness Resilience. We're excited to be part of your journey.
👋 Welcome to Chronic Illness Resilience
2 likes • 18d
Hey Keith, What a clear and concise opener of what this area is about, I feel we can all relate to your story and your growth mindset. It was a pleasure to catch up with both Amy and yourself the other day. So here goes about me; I’m Lynne I live just outside Ely north of Cambridge I’ve been living with chronic illness most of my life, allergic asthma from 6 months, EGPA Vasculitis for 19 years. We have no control of the hand we are dealt. We do have control of what we do with that hand. I echo your journey Keith and I for a while would mourn my old life and what I had, yet reflecting back I am the person I am today because of it all. I consider myself to be a resilient person, optimistic and forever challenging the status quo. I’m a believer that there is always a key to something even if we don’t know what it is yet. I’m currently building my own coaching business around how our emotions play such an important part of our life’s journey and how by noticing, naming and normalising them we get to choose different way and reframe our outdated beliefs. I work with kids in school too (hey I was the rebel I never thought I’d go back to school!) but I work with teens struggling to make sense of emotions, their challenges of beliefs and ultimately I come across many who have the added challenges of chronic illness too. Pleased to be here, thank you again Keith and Amy for inviting me along.
1 like • 11d
@Amy Keith I’m looking forward to welcoming and hearing how others have shaped their journeys and how our stories start to become our stepping stones to growing in a way that we perhaps never imagined. Many of us have perhaps lived a life of ‘super coping!’ Now is the turn for super feeling and taking back a renewed power
What’s the quickest way you’ve accidentally spent a good energy day? 😄
Living with chronic illness can sometimes feel like managing a very enthusiastic but unreliable energy budget.
What’s the quickest way you’ve accidentally spent a good energy day? 😄
1 like • 17d
@L M I hear you on this one, I too have done the same. I have enjoyed the day mind 👏😀
If energy wasn’t the limiting factor in your life right now, what would you love to spend more time doing?
Many people living with chronic illness find that their days become shaped more by capacity than by desire. Over time, it can become easy to lose sight of the things we still value or enjoy. This isn’t about pressure or comparison — it’s simply about reconnecting with what matters to you. If you feel comfortable sharing, we’d love to hear: • What would you do more of if energy wasn’t an issue? • Is there something you miss doing? • Or something you’ve adapted in a new way? Sometimes just naming these things helps us reconnect with what still matters, what still brings us joy, and the life we're trying to build—not just the illness we're trying to manage. There are no right or wrong answers. We'd just love to hear your story. ❤️
0 likes • 19d
@L M that’s a really interesting observation and would love to learn more ? I wonder if you started your own thread on here it may prompt other people’s input to their journeys too. We evolve through illness and learn new ways. We also perhaps mourn what was, what has been and not fully sure whats yet to come. I personally wouldn’t be who I am today without a chronic illness stopping me in my tracks, making me take stock of my life, digging into depths I never knew I needed to dig into and realising thst if I’d have listened sooner I may have been on another path yet if I hadn’t had this journey I wouldn’t be me now.
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Lynne Collins
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@lynne-collins-7312
Emotional Health Coach - Empowering you to bounce back quicker & to live the life you want.

Active 2d ago
Joined Sep 24, 2026
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