Following 18
Erin Nance
Active 21d ago
Bio: I’m a tennis loving, Broadway-belting, pop culture obsessed Dr. mom to an 8 y/o bookworm 🐛. I was undiagnosed w/multi-focal motor neuropathy for 1 yr
Nadia Yu
Active 399d ago
Bio: Hi I am Nadia!! I’m 17 and suffer from multiple chronic illnesses. I’m excited to be here 🤍
Jeremiah Goska
Amherst virginia
Active 20d ago
Bio: I have nf1/nf2 fibro and chronic pain cervacalgia scoli and more
Angie Gorz
United States
Active 31d ago
Bio: I’m a disabled and neurodivergent and have a host medical issues, some rare. I am also a married mom to a disabled, neurodivergent adult.
Rebecca Tunstall
Active 565d ago
Bio: Mum of two little wildlings Dystonia, EDS type 2, POTS, CRPS, Paralysis of right leg, seizures Author Merseyside UK
Beth Feiss
Pennsylvania
Active 646d ago
Bio: PCOS, HS and Bariatric patient. Diagnosed with PCOS in 07, HS in 13 and had VGS in 21. PTSD, Depression and Anxiety too. Childhood trauma survivor!
Stephanie Nixon
Active 2d ago
Bio: A cat-lover, speech-language pathologist, and person who navigates chronic illness and medical systems
Danielle Hershman
Active 585d ago
Bio: I am more than a chronic pain patient. I am more than my drug addiction. I am more than my mental health diagnosis. I am human.
Amanda Hembree
Active 663d ago
Bio: My name is Amanda and I live in Indiana. I'm 35 yrs old and a Mom of 2. I call myself a walking medical mystery because noone can give me answers
Farrah Johnson
Active 550d ago
Bio: “If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.” -MLK Jr.
Xandri Amica Rainbow Sieberhagen
Pretoria, South Africa
Active 15h ago
Bio: I am Amica, from South Africa. I have Hypothyroidism and Hyperhomocysteinaemia. I love to do research and love Schnauzers. I love to bake 🧁!
Maura Grier
Active 432d ago
Bio: Disney lover, psychology student, aspiring child life specialist, with a touch of EDS and comorbidities 💜
Mary Stone
Active 553d ago
Bio: Wife. Mother. Teacher. Lover of God. Encourager. Simplifier. Life-long Learner. Undiagnosed lung issue. Turning to natural remedies.
Rachel OGrady
Lyme, CT
Active 4d ago
Bio: I’m Rachel O’Grady. I am 39 years old and a resident of Lyme CT. I am a Rare Disorder Warrior and a part time volunteer advocate for NORD.
Kj Dunlop
Edmonton, Alberta, Canada
Active 18d ago
Bio: Hello, I’m KJ. I’m 28 years old (they/them). I have an extensive mental health history and an even more complex physical history. Ask me anything !!
Victoria Pastor
Active 529d ago
Bio: I'm a 25 y/o woman who suffers from fibromyalgia, arthritis, OCD & more. i'm here to help myself and hopefully others!
Brittany Ward
Active 528d ago
Bio: I am Brittany, i am 31 years old. I am trying to manage my disorders, POTS, RA. CKD, FIBRO and more. I can no longer work as an EMT 🚑and a volly FF🚒
Jillian Miranda
Active 423d ago
Bio: Jill here - an NYC based dog mom (of two 🐶🐶) - I'm a founder and consultant in women's health and femtech
1-18 of 18
Heather James
@heather-james-4681
Cervical Dystonia warrior, proud pug owner and Regulatory and Compliance Specialist at Magnolia Cannabis Farms. Please feel free to ask me anything!

Active 19d ago
Joined Dec 10, 2023
ENTJ
Mississippi
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