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2 contributions to Chronic Illness Resilience
💫 NEW: Passion Projects
There’s more to us than managing symptoms, appointments and energy levels. We also have ideas. Interests. Businesses. Creative projects. Causes we care about. Things we’re building, learning, writing, making or dreaming about. So we’ve created a new Passion Projects space in the community. 💛 This is somewhere you can share something you’re working on that genuinely matters to you — whether it’s already out in the world or still just taking shape. Maybe you’re: ✨ Starting a business ✨ Writing a book ✨ Creating art, music or content ✨ Building a website or community ✨ Studying or learning something new ✨ Raising awareness for something you care about ✨ Working on a personal project ✨ Or quietly nurturing an idea you’d love to bring to life Tell us about it! What are you working on? Why does it matter to you? And is there a way this community could support you? That might simply mean taking a look, following your page, sharing some encouragement, giving feedback, or helping you make a useful connection. And if you’re not working on anything right now, that’s absolutely fine too — come have a look at what other members are creating and give them a little support. ❤️ One of the best things about building a community is discovering just how interesting the people inside it are. 👇 So, what’s your passion project?
1 like • 3d
Thank you so much to everyone who has responded to my earlier post. I’ve genuinely found the comments really helpful, and they’ve given me quite a few things to think about that I hadn’t considered myself! I’m still very much experimenting at this stage, but once the app starts taking a bit more shape, I’d really like to come back and share some of the ideas with you and get your thoughts. There’s also another direction I’ve been thinking about, probably for a later stage: ADHD in the workplace. One thing I’ve noticed is that there can sometimes be quite a gap between what an ADHDer experiences at work and what a manager or employer understands about how best to support them. So I’m wondering whether there could eventually be a workplace element to the app. The important part for me would be that it remains led by the ADHDer — they decide what, if anything, they want to share. It wouldn’t be about an employer having access to somebody’s personal information or monitoring them. Instead, perhaps it could help someone understand their own working patterns, challenges and strengths, and then, if they choose, communicate some of those needs to their manager in a useful way. On the other side, it could give managers practical, evidence-based guidance about how they might support someone rather than expecting them to already understand ADHD. For example: “This is something I find difficult at work; this is what might be happening for me; and these are some things that could help.” This is definitely a later-stage idea, but I’d really value your perspective: Would something like this be useful? And if you were using it, what would you want your manager to understand about your ADHD — and what would you definitely NOT want an app to share?
1 like • 3d
@Lynne Collins Thanks Lynne. Definitely will be happy to provide an update and maybe run some free pilots with the group :)
👋 Welcome to Chronic Illness Resilience
We're so glad you're here. If you've just watched our welcome videos, you'll know this community isn't about pretending chronic illness is easy. And it isn't about staying stuck either. It's about moving forward. Every person here has a different story, but many of us share the same feeling... Life changed, and we're trying to figure out what comes next. That's exactly why this community exists. We believe chronic illness may change your life, but it doesn't have to stop your life. Whether you're here to rebuild your confidence, rediscover your purpose, adapt to a new reality, or simply connect with people who genuinely understand, you're in the right place. We'd love to get to know you. 👇 Introduce yourself in the comments using these three prompts: 1. Where are you joining us from? 2. How long have you been living with chronic illness? (Or are you supporting someone who is?) 3. What's one area of your life you're ready to move forward with? Take a few minutes to read through the introductions and welcome a few other members too. This community grows stronger every time someone reaches out. Welcome to Chronic Illness Resilience. We're excited to be part of your journey.
👋 Welcome to Chronic Illness Resilience
0 likes • 3d
Hi everyone 👋 1. My name is Cola and I am joining from West Sussex, UK. 2. I’ve been living with chronic illness for over 10 years It has definitely changed parts of my life and made me think differently about my health, energy, work and what really matters to me. 3. The area I’m most ready to move forward with is finding a better balance between my health, work and the life I want to build. I’d like to have more energy for the things I enjoy, feel more in control of my time, and create a life that feels meaningful rather than constantly trying to keep up. I’m really interested in learning from other people’s experiences too, especially how people have adapted, rebuilt confidence and found a new sense of direction after life changed. Looking forward to getting to know everyone 😊
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Cola Chen
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14 points to level up
@cola-chen-6784
Clinical Education & Innovation | Organisational Psychology | AI, Digital Learning & Simulation | Healthcare Programme Lead

Active 2d ago
Joined Sep 2, 2026