12d (edited) • General discussion
Read This First 👇 Why This Community Exists
If you’ve ever been told:
- “It can’t be Ankylosing Spondylitis — there’s no spinal damage yet.”
- "You are too young."
- “Your pain can’t be that bad.”
- “Let’s wait and see.”
…welcome. You’re in the right place.
I built this community out of frustration.
Ten-minute medical appointments. Endless gaslighting. Real pain brushed off because imaging didn’t look dramatic enough. Meanwhile, I was dealing with constant flares — nerve pain shooting through my arms and legs, eye pain, groin pain, gut pain, and deep lower-back inflammation that never fully let up.
No one wanted to ask why.
So I did.
I listened to podcasts. Read Facebook groups. Dug through Reddit. And everywhere I looked, the answer was the same:
Biologics. Genetics. There's nothing else you can do. Full stop.
But no one could explain why AS symptoms appear in the first place — or why flare-ups felt so tightly linked to what I was eating.
Then I heard a random podcast where someone casually mentioned going into remission by cutting starch.
That sent me down a rabbit hole: no-starch communities, old medical studies from the 1980s, gut bacteria, immune signaling, HLA-B27, and a whole lot of NEW research and science that exists in the last two years — but rarely gets explained to patients.
Most diets I tried failed. Vegetarian and vegan made things worse. “Anti-inflammatory” worked sometimes but not always. Then I committed to no starch, no sugar, London AS-style.
Week 3: worst flare of my life.
Week 4: symptom-free for the first time in 10 years (and 2 years no flares so far).
Not cured. Not perfect. But finally in control.
Digging further, I found new research and experiments explaining my experience with validated, peer-reviewed medical journals. Finally, dots were connecting.
That’s what this community is about.
What This Group Is
✅Understanding how AS works — not just what it’s called
âś…Connecting gut, immune system, diet, and flares
âś…Science-first discussion (not vibes, not miracles)
âś…Real experimentation, real data, real hope
What This Group Is Not
đźš« A biologics-bashing cult
🚫 “Just think positive” platitudes
đźš« One-size-fits-all answers
Everything here is open for discussion — but keep it respectful, evidence-based, and focused on helping others.
If you’re newly diagnosed, dismissed, or just tired of being told to wait while your body burns — this space exists so you don’t have to figure it out alone.
Welcome to the Alliance.
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Read This First 👇 Why This Community Exists
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In this group we will cover recent experiments and studies in the last 5 years that have advanced both new treatments and therapies for AS.
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